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Support Groups and Resources
UT Southwestern Medical Center has a caring staff of medical professionals who are committed to enhancing patients’ quality of life as well as meeting the needs of patients’ families. Our staff can direct them to a variety of informative and enriching support groups and other resources, which can be tailored to meet a specific situation.
At UT Southwestern, excellence in patient care includes pointing the way to resources that patients and their families may not be familiar with, but which have proved invaluable to others. We trust these services will assist patients on the road to healing and improved health.
Support Groups
UT Southwestern’s Kidney, Liver and Pancreas Transplant Program understands the transplant process can be difficult for patients and their families. Meeting the emotional needs of patients and families is equally important as meeting their medical needs. One of the ways UT Southwestern offers support is by providing the opportunity for patients to meet with each other and share their experiences.
The transplant support group meets monthly at UT Southwestern University Hospital. For more information contact the program social worker at (214) 645-1919.
Web Sites
Liver Disease Foundations and Groups
Alpha-1 Foundation
The Alpha-1 Foundation is dedicated to promoting leadership and resources that will result in increased research, improved health, worldwide detection and a cure for Alpha-1 Antitrypsin Deficiency.
American Liver Foundation
American Liver Foundation (ALF) is the nation’s leading nonprofit organization promoting liver disease prevention and liver wellness. ALF provides research, education and advocacy for those affected by liver-related diseases, including hepatitis.
HCV Advocate
The Hepatitis C Support Project (HCSP) is a registered nonprofit organization founded in 1997 by HCV-positive individuals to address the lack of education, support and services available for the HCV population. HCSP's mission is to provide information, support and advocacy to all communities affected by HCV and HIV/HCV co-infection, including medical providers.
Hep C Connection
Hep C Connection is an educational, support and prevention network for those affected by, or at risk for, hepatitis C.
Transplant Organizations
Division of Transplantation (DOT), Department of Health and Human Services (HHS)
The Division of Transplantation (HRSA/HSB) manages contracts with the Organ Procurement and Transplantation Network (OPTN), the Scientific Registry of Transplant Recipients (SRTR) and the National Marrow Donor Program (NMDP). The division also administers grant programs and conducts public and professional education initiatives to increase awareness of the critical need for organ and tissue donors.
The Glenda Dawson Donate Life Texas Registry
This organ-donation registry is operated by the Texas Department of State Health Services. Texans can register to be an organ, tissue, and eye donor.
Southwest Transplant Alliance
Southwest Transplant Alliance (STA) is a nonprofit organ and tissue donor program serving hospitals and patients throughout much of Texas. Founded in 1974, STA is one of the largest of 59 federally designated organ procurement organizations in the U.S. In its service area, STA is the official link between those who need an organ to survive and those who have the potential to save lives by becoming donors.
Transplant Experience
The Transplant Experience program was created to meet the specific needs of the transplant patient throughout the transplant process.
Transplant Living
Learn about the process of receiving an organ transplant, from before the procedure to the road to recovery.
UNOS
Located in Richmond, Va., the United Network for Organ Sharing (UNOS) is a nonprofit, scientific and educational organization that administers the nation's only Organ Procurement and Transplantation Network (OPTN), established by the U.S. Congress in 1984. UNOS collects data about every transplant event occurring in the U.S., facilitates the organ matching and placement process, and brings together medical professionals, transplant recipients and donor families to develop organ transplantation policy.
Fundraising and Financial Assistance Organizations
Disability and Social Security
The Social Security disability insurance program pays benefits to patients and certain family members who have worked long enough and paid Social Security taxes.
National Transplant Assistance Fund (NTAF)
NTAF has more than 24 years experience empowering patients and communities to raise funds to cover uninsured medical expenses related to transplantation and catastrophic injury.
Transplant Foundation (TF)
Established in 1987 by thankful transplant recipients, Transplant Foundation focuses on providing financial and emotional support to transplant patients.
